I first got indications of the problem in my left hand in my early twenties. It started as a lump on my palm and although I discussed it with my GP in my late twenties never had anything done about it at the time.
My right hand began to develop the condition in my forties and progressed more rapidly than the other hand had done, two fingers becoming bent at more than a right angle into the palm. In the end the inconvenience (hardly being able to pick up a pint of beer) overcame my exceedingly high level of anxiety and I was referred to a surgeon. He told me that the operation should be able to be done under a local anaesthetic (arm deadened by a block) so I decided to go ahead. In the event a general anaesthetic was required. When I came round in the basement of the Queens Medical Centre surrounded by many other half awake individuals in flowered nighties I was amazed to find the op had taken two and a half hours!
As I had allowed the condition to progress so far it had been necessary to remove skin from my upper arm to repair my palm and finger. I now have some hair growing on the front of my fingers of my right hand. Mad or what.
The surgeon did an excellent job but I have to say that I was not prepared for the considerable and fairly excruciating pain that I experienced in the post operative period. This was I understand due to the fact that the many nerves present in the fingers are damaged in the course of the operation and need to repair over a period of time. Numbness of the finger ends was also present for a time but this resolved.
Three years on I am clear that the operation was a success. I have more mobility in the right hand although I am unable to clench it as tightly closed as I could. I now have one hand that won't fully close and one that won't fully open.
Why have I not had the other one done?
- I have concerns about subjecting myself to a two and a half hour anaesthetic for a non life threatening condition - if I had known it was going to take so long I might not have had the right hand done
- It was very very painful
- The condition can return though fortunately mine has as yet shown no evidence of returning
I suppose the lesson that I have learned from my experience is that if you begin to develop the condition get it resolved whilst it is in it's early stage of development and requiring less drastic surgical intervention.
27 comments:
David,
Have you heard of a procedure to treat Dupuytren's contracture called needle aponeurotomy? Minimally invasive, a needle is used to cut the cords, which are then stretched and snapped, restoring finger range. I've had this done twice, much better than surgery IMHO. A link to the first MD to perform on me.
http://www.handcenter.org/newfile16.htm
http://www.handcenter.org/newfile23.htm
stevebopp@gmail.com
I just read your blog on Dupuytren's Contracture and am sorry that you are having to deal with the disease. .I thought you might be interested in knowing about the latest possibility for help. There is clinical studies going on at UCLA. They are just starting third stage clinical studies (I am a guinea-pig in the experimental trials that started in November that is showing good relief from the problem and it will probably be about two years before the product hits the market.) It is something I have been following for the last couple of years. I have chosen not to have any operations on my hands. I have four fingers and both thumbs with the disease and they don’t function very well. As my doctor says” they aren’t the Guinness Book of Records hands but they sure are close. (for photos of my hands you can see them on my blog page; http://www.whatartdidhemaketoday.com/2007/10/dupuytrens-contracture-hand-art.html
For more info about the clinical studies here’s a link to the US gov. site http://www.clinicaltrials.gov/ct/show/NCT00528606?order=2. You can also do a search on Auxilium Pharmaceuticals which is the one developing the Clostridial Collagenase for Injection.
All my best to you.
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Thanks for posting. I was just diagnosed a week ago so am surfing the internet to learn about Dupuytren's. I'm stressed because I'm a pianist.
I also decided to chronicle this journey with a blog dupuytrensmania.blogspot.com
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